I'm so excited to see the teams Monday night. I planned a trip for medical reasons around it. I'm going to NIH in Bethesda for tests for LAM - lymphangioleiomyomatosis. Its a rare lung disease that only affects women. Only about 2,000 in the world! Please help raise awareness about it.
www.thelamfoundation.org It's often misdiagnosed as asthma, emphysema.....
In January 1999 I was told I might need a lung transplant in 3 or 4 years. I was in shock. That night I was supposed to attend a scholarship banquet at the Aqua Turf for one of my volleyball players. I couldn't stay home and let my kids see how upset I was. My husband was out of town. So I went to the banquet and told myself I would hear somthing that night that would help me get thru this. You know how all those speeches go at these kinds of things. So finaly Geno gets up and is talking about Howie Dickerman, he was basically roasting him about his move to Central the year before. Geno then says "So how did he take a horrible situation and turn it around?" I sat up in my chair and thought here it comes. Geno said "He surrounded himself with good people" That single thought got me thru the next several months as I had to focus on this unexpected health situation. I wrote Geno much later and he replied saying it makes all his appearances worthwhile to hear things like this.
So I will be enjoying every minute of this game in DC with my original lungs. Thankfully my LAM progression has been slow. Sorry for the length of this post but I am forever grateful for those words of encouragement I took from that night in 1999.