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Message: [QUOTE="Zissou, post: 3197343, member: 7920"] Good luck Madmann. The life expectancy thing is widely variable. From my experience it may only be months but it still may be years. Doc’s predictions are mostly a guess. An educated guess, but a guess. 24/7 care is tough. Maybe consider some respite program to help you manage. We have a day program that is only $100 per day, 9am to 4pm, and includes lunch, snacks, and personal care. The same facility is $12,000+ per month for full time care. Two days a week can help a lot. Our situation is a much more advanced symptom stage. We run across very few others with this diagnosis. [/QUOTE]