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Message: [QUOTE="UconnPT2007, post: 3251886, member: 5861"] I see Dr Katz and saw another LLMD prior to him. It’ll be 2 years battling Lyme and Bartonella (I had about 6 months of remission but symptoms returned earlier this year). I got treated fairly rapidly since I was Lyme educated previously (my best friend had Lyme and Babesiosis a year prior) and I’m still in a dogfight. You need an LLMD, combination antibiotics, the right supplementation, and a lot of patience for the trial and error to find out what combination works for you and what you can tolerate. Symptoms take precedence over testing. It’s a nightmare at times - I don’t even bother discussing with other docs as most have a complete lack of knowledge on the subject. I work in the medical field myself and interact with doctors all the time. Had a well known infectious disease doctor tell me i couldn’t have Lyme or the co-infections after a round of antibiotics and that I either had cancer or an aneurysm. Morons. It’s also cost me boatloads of money but luckily I’ve maintained a high level of function for most of the battle. I often wonder how many people are walking around with psych or neuro diagnoses when it’s really Lyme or tick borne illnesses causing their symptoms. My symptoms are mostly psych plus fatigue - instead of being offered testing for Lyme by my neurologist when I first became sick I was offered an anti depressant which I promptly threw in the trash and got myself tested - which sure enough revealed Lyme, and later on discovered Bartonella through one of the better labs (Igenix, MDL) as Quest tests are worthless outside of the western blot. The 2 key takeaways are always check yourself for ticks after being outside (plus other preventative measures such as getting your yard sprayed for ticks) and get to an LLMD if you have any suspicion of Lyme. I do know folks who have successfully treated with herbs or by seeing a naturopath as well. There are some Lyme literate quack docs out there, but people who deny the existence or the depths of these tick borne illnesses are quacks too. Go Huskies! [/QUOTE]

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