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Message: [QUOTE="Uconnfanatic, post: 3250498, member: 4150"] Yup, Dr Ami Katz is a Lyme literate neurologist in the New Haven/Bridgeport area. I never said anything about a CDC conspiracy. I just said that the CDC & IDSA are putting out misinformation. The IDSA says right in their guidelines that there is no such thing as chronic Lyme & the a few weeks of antibiotics kills all Lyme bacteria. That's not even close to being accurate & there is plenty of science to show why. Spend 19 years as a Lyme patient advocate as I have & you become very familiar with the signs & symptoms not only of Lyme but also the coinfections. I can usually separate out & identify Lyme from Bartonella from Babesia & from other ailments simply from symptomology. Sure there are cases where one can't be sure it's Lyme but often it's as clear as can be & there is no doubt based on the weight of the evidence. I have helped thousands who were initially left hanging by uninformed PCPs. You might want to read a few books before forming too strong an opinion about this disease that is surrounded by a lot of myth & misinformation & is very misunderstood. I have seen this disease destroy so many lives, including those of doctors, lawyers and other professionals. Much of CFS, fibromyalgia, MS, Lupus and many other ailments labeled as autoimmune are Lyme & associated coinfections. Testing is poor & much the medical establishment is just plain ignorant of the disease. That leads to a lot of misdiagnosis & prolonged illness. The fatigue of Lyme has been measured down at Columbia Presbyterian in NYC as equal to congestive heart disease. Babesia, one of the coinfections, is a malaria like parasite that is causing concern in the Red Cross because it is tainting the blood supply. It is typically disabling but not deadly when contracted from a tick bite. However, it has proven deadly to immunocompromised patients who contract it through a blood transfusion. The Lyme epidemic is big & not exaggerated. The diseases are real & should not be taken lightly. The myriad of symptoms can be life-altering. Take it seriously. [/QUOTE]

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