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Message: [QUOTE="Uconnfanatic, post: 3247331, member: 4150"] Lyme disease is in every state & is particularly prevalent in the Northeast, Upper Midwest, Northern California & the Northwest. But there is plenty of Lyme in the Southeast, South & Midwest. Also prevalent in Europe & Canada among other places. Don't put much trust in the CDC or their numbers. They have downplayed the disease & misinformed for years. Their five band criteria is a surveillance criteria & not meant to be used as diagnostic criteria. In 2004 at an all-day Lyme hearing in Hartford then Atty General Blumenthal made a request of the CDC representative Paul Mead that the CDC state that on their website. He had to repeat the request several times before Mead finally agreed they would post this clarifying statement. It was up on the CDC website for a year & then quietly removed. The vast majority of establishment doctors are still using this 5 band surveillance criteria to wrongly deny millions of patients a Lyme diagnosis. This means millions of patients are being misdiagnosed or undiagnosed & having treatment delayed sometimes for years. Now 15 years later the CDC is being asked to provide a clarifying statement and supposedly is going to comply. The CDC & the Infectious Diseases Society Of America (IDSA) have been big contributors to the misinformation that surrounds Lyme disease, particularly in the areas of diagnosis & treatment. It has led to a tremendous number of people ending up with a chronic, debilitating illness that could have been avoided if onlt their doctor had properly diagnosed and treated the Lyme when it was in its acute stage. In my daughter's case we just missed it. She had it in her system for a year before we realized the toll it was taking on her body & her brain. She was compensating as achievers do so her grades didn't slip & she was still competing athletically at a high level until it finally became apparent that something was wrong. Her pediatrician did diagnose her & within a month or two we did find a good LLMD. But it still took years of aggressive treatment because of the year delay. Don't take this disease lightly. Early & proper treatment are the keys. [/QUOTE]

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