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Message: [QUOTE="Rewster, post: 3246815, member: 5070"] I say this in the kindest way because I know you are well meaning but it’s a low bar you are setting. On the whole Lyme disease is not detected or treated well anywhere. There is a misperception on what the symptoms look like. It is missed at a high rate particularly without Bell’s palsy, swollen joints and bulls eye rash, none of which I had and my blood test where off the charts positives. I had the disease for years before I insisted on a Lyme test because I did not present in way doctors recognized. The medical community and the country is asleep at the wheel concerning Lyme and its coinfections. The biggest push for proper treatment and research is being made by the Lyme community and very wealthy people who have given millions of their own money to search for a cure because themselves or loved ones have been debilitated by this disease. The guidelines for treatment are archaic and this dictates the limits in which a doctor is willing to treat you. If he/she exceeds those guidelines they run a very high risk of loosing his ability to practice. Most doctors will not treat chronic Lyme. Look I am not trying to be an alarmist. Most treated get well. The longer you go without treatment the more difficult. If you have coinfections particularly if not tested for or detected the road will be even more difficult. My advice to anybody is to take it seriously and treat with a knowledgeable doctor. There is a lot of research happening now. I feel very hopeful that the next 4-5 years we will be in a very good place with regard to detection and treatment. [/QUOTE]

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