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Message: [QUOTE="upstater, post: 3246492, member: 153"] Thanks for this. Unfortunately, we've found there are no Lyme literate doctors around us. We'll likely be going well out of our way. We have appointments with people NEXT YEAR (yes, we called multiple LLDs, and they are fully booked). We're looking to make arguments to have our locals give the medication now, prior to seeking out doctors. As well, the LLDs are asking for $3k per office visit. I was the one who mentioned Steere, and I know he is a Chronic Lyme denier (doesn't believe antibiotics are treating the central Lyme bacteria after the initial treatment, but rather other co-infections or still other viruses, like Epstein-Barr). I only mentioned him because he does believe there is such a thing as Lyme Arthritis, which is caused by either damage to joints from untreated Lye or else an autoimmune response which obviously can't be treated by antibiotics. He is one of the few doctors that use DMARDs for this, common drugs for people with RA, but people with Lyme Arthritis don't present as RA to rheumatologists. If only we could get the Rheumatologists to actually talk to the LLDs. But it doesn't appear as though that is happening. At the very least I learned 2 things in this thread: 1. Many doctors in Connecticut prescribe the meds prior to test results, if they see symptoms, as variable as they may be. 2. Many patients aren't quite aware of what the tests actually say when the doctors tell you you are negative or positive. I am glad we requested a transcript of my daughter's test results, or we would have gone away not knowing that her so-called negative was actually a positive of the ELISA test, and then 3 bands Lyme-reactive on the Western Blot, which of course earned her a negative overall. [/QUOTE]

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